Check out this article: Medical myths inspire fellowship and service by Dr. John Philip, Past District Governor of District 1040 and Chairman of the International Fellowship of Rotarian Doctors
 
John (back row, middle) and wife Chris (back row, left) with a local family they have befriended in Ukerewe.
In 2009, I led a team of volunteers on a trip to the island of Ukerewe, Tanzania, where I met with the Chairman of the Ukerewe Albino Society. A slogan scribbled in black ink on the wall of his simple mud hut office caught my attention: We do not melt in the sun, we do not disappear, we live and die like normal people.
 
Since 2009, my wife Chris and I have visited Ukerewe, Africa’s largest island, ten times with volunteer groups to support the local community, including those with albinism. The Government of Tanzania had declared Ukerewe a safe haven for people with albinism and the island’s small albino community lives in relative safety.
 
Unfortunately, people with albinism living on mainland Tanzania, particularly in the Lake Victoria region, live under constant threat. Skin colour has always divided nations and communities. Recently, the absence of skin colour, an inherited condition called Albinism, has put a price tag on people’s lives and on their body parts in some regions of the globe. People with Albinism lack of melanin pigment in their skin and appear to have “white” skin, sensitivity to ultraviolet radiation and risk of developing skin cancer and significant sight problems.
 
While numbers vary, an estimated one in every 20,000 people has some form of albinism in North America and Europe.  In Tanzania, albinos represent one in every 1,429 births, more than in any other nation. According to Al-Shymaa Kway-Geer, an albino Member of Parliament, 6,977 documented and up to 17000 undocumented Persons with Albinism (PWA) live in Tanzania.
Alfred Kapole, Chairman of Ukerewe’s Albino Society. Photo courtesy of John Philip
 
In Tanzania, the albino community is stigmatised, exclude from education and employment, often physically assaulted and sometimes brutally murdered.  They live in fear because of widespread myths that their body parts have magical powers. It is becoming increasingly more common to seek out albino limbs; the body parts are believed to bring good luck – they can help win elections, make businesses successful and destroy enemies.
 
We knew we couldn’t turn a blind eye to this terrible situation. After I presented the case for a Rotary project to the Fellowship of Rotarian Doctors, we circulated information about our plans to the wider Rotary network and received support from the USA, France, Portugal, Sweden, Geneva and India. Working with the Rotary Club of Moshi, Tanzania, as the local host club, and Mirfield Rotary Club in the UK as the international partner, we obtained a global grant to run a two year holistic project to help people with albinism in Tanzania.
 
 
 
 
The main aspects of the programme include:
 
Village education and peace building – Through a series of meetings at the heart of the community with high incidence of violence against PWAs, we will seek to change beliefs and myths about Albinism. Several meetings have already taken place in the Mara region and the communities’ response has exceeded all expectations. One village leader in Chitari said “We’ll not tolerate any attacks on the Albinos. They are our brothers and sisters.”
 
Improved Health care – We will work with local health providers to ensure PWAs have access to affordable skin cancer screenings and eye care.
 
Vocational training and microcredit loans– We will provide training opportunities to PWAs to improve their skills, acquire new skills, and improve their earning potential. The Musoma Rotary Club has launched a training programme and microcredit project to help PWAs. Seven groups have already been formed, each being a mixed group – albinos and nonalbinos. Our hope is that by working together, they will come to appreciate that beneath our varied external appearances we are all the same.

We strive to help a marginalized and discriminated community claim their rightful place in the society and live without fear or prejudice and ensure they ‘live and die like normal people’.
 
For more information about this project, contact PDG Dr. John Philip.
 
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